A committee of experts will conduct a study examining the current landscape of newborn screening (NBS) systems, processes, and research in the United States and consider sustainable adoption of ...
As newborn screening programs expand to include babies’ entire genomes, parents must be made aware of the privacy risks and states must create rules to rein in unbridled police access to this data.
WASHINGTON — Leadership and coordination at the national level are needed to build on the strength of screening programs that test all newborn babies’ blood for serious health conditions and to ensure ...
Background: Newborn screening is a complex system of interrelated multidimensional components singly focused on safeguarding the health of our nation's newborns. The long-term health outcome and ...
Nearly every baby born in the U.S. has blood drawn in the immediate hours after their birth, allowing the baby to be tested for a panel of potentially life-threatening inherited disorders. This is a ...
When federal lawmakers set out to improve the nation's newborn screening programs in 2007, they succeeded in creating grants and increasing the number of conditions tested throughout the country. Yet ...
Early results from 4,000 babies show that genome sequencing picks up many more serious health conditions than standard newborn screening and is favored by most parents. Early results from a study of ...
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